WHAT IS POTS?
POTS is a type of condition associated with Dysautonomia, which is an umbrella term used to describe any disorder of the autonomic nervous system (ANS).
Postural orthostatic tachycardia syndrome (POTS) leads to an abnormal increase in heart rate when standing up. This can cause dizziness, fainting, and a range of other symptoms.
WHAT causes POTS?
The exact cause of POTS is unknown, but it is believed to be associated with problems in the autonomic nervous system. Factors such as viral infections, trauma, surgery, pregnancy, or other conditions can trigger it.
living with pots
Some patients have fairly mild symptoms and can continue with normal work, school, social and recreational activities. For others, symptoms may be so severe that normal life activities, such as bathing, housework, eating, sitting upright, walking or standing can be significantly limited.
Physicians with expertise in treating POTS have compared the functional impairment seen in POTS patients to the impairment seen in chronic obstructive pulmonary disease (COPD) or congestive heart failure.
Approximately 25% of POTS patients are disabled and unable to work. Researchers found that quality-of-life in POTS patients is comparable to patients on dialysis for kidney failure.
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POTS is diagnosed through a combination of patient history, physical exams, and tests such as a tilt table test or 24-hour heart rate monitoring to observe changes in heart rate when moving from lying down to standing.
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There is no cure for POTS, but the condition can often be managed with a combination of lifestyle changes, medications, and therapies that target symptoms. Treatment plans are usually individualized.
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Our non-profit provides education, resources, and support to individuals with POTS and their families. We also raise funds for research to find better treatments and eventually a cure for POTS.
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You can get involved by volunteering, donating, or participating in our awareness campaigns and fundraising events. We also welcome advocacy efforts to spread awareness about POTS in your community.
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All contributions help us with advocacy initiatives.